Wednesday, November 10, 2010

In The Dark Of Night...


the demons come.

they invade my thoughts...

threatening my peace...

ravaging my heart...

dominating my mind...

devouring my happiness.

i whisper of their existence

reluctant to give them a voice.

they haunt me.

they mock me.

they are my enemy.


but HE is the answer.

i cry out to HIM.

HE is my rescue

my SALVATION.

with the sound of HIS VOICE the demons retreat in fear.

HE restores my peace...

my heart can rest

and slumber finds me.

Thursday, November 4, 2010

Squeezing Life's Lemons

We all know the old saying, "When Life Gives You Lemons...". And of course, we have all puckered up from time to time as life tends to give us all a lemon or two every now and again. In an attempt to be helpful, some of us can be all too eager to toss out the old adage to anyone facing life's struggles as if by making the assertion sour will suddenly become sweet. This statement is positive thinking at its finest. And who doesn't want to be positive. But sometimes the lemons being served up are well past their prime and it is impossible to turn rotten fruit into any kind of tasty concoction. No amount of sugar by way of positivity will mask the nastiness. You simply must hold your nose and choke it down...sometimes chugging one glass right after another. These are times when you know beyond a shadow of a doubt you are getting the short end of life's happy stick.

I guess cancer could qualify as one of those moments. It would by no means be a stretch to say cancer equals one tall glass of barf juice...juice from the most rotten lemons. Having a flask of this foul but potable liquid shoved in my hand, I had no choice but to swill, swig and swallow. Here is where it gets interesting. I have a major gag reflex. Try as I might to chug-a-lug, all I did was heave and hurl. I decided it was time to protest. To kick up my heels and revolt. Not willing to drink alone, I called in the troops. Life's libations are more easily tolerated when shared with friends. If nothing else, they could administer CPR lest I begin to drown in my own regurgitation.

I've written much bemoaning the loss of my hair...another sour, rotten, old lemon. I will not lie. I hated the idea of being bald. Yet after throwing a fit or two over the unfairness of it all, I began to feel better. One point to note, do you not find it interesting how ugly begets ugly? Not only would I be poisoned in an attempt to banish cancer cells from my being, but my appearance was going to take a side trip to the land of grotesque. I was forewarned of all to come....mottled skin, broken (if not loss of) nails, puffiness, weight gain (every girl's nightmare) and of course the mother of all horrors... total loss of hair. And by total hair loss, they meant hair on head, eye lashes, eye brows, hair on legs...although this one is by no means a negative. You learn to miss hair you didn't even realize you had. But I eventually came to terms with it. What the heck. It's only hair and it will grow back. Besides, I received some good news. My course of treatment would allow me to "keep" my hair through the first 12 weeks of treatment. Three months as a baldy was WAY better than six. The first round of chemo would only cause my hair to thin and only to the point of being noticeable by me.

Well, "Life" must have gotten wind of the insurgency to come and planned its own form of retaliation leaving me hairless from the get-go. Leave it to me to be different. To experience side effects unlike the norm. Always marching to the beat of my own drum, I must say this was one time it would have been nice to have been a conformist.

Me and my not-so-wee-ones with a hat to hide my "hag" hair

Seeing this as only a minor set-back and by no means interpreting it as a battle lost, I forged ahead with my plans to laugh in cancer's face...literally. What did I do? I took my jar of "jungle juice" and threw a party. I called it my "Buzz Me, Baby" party. With friends and family to witness the moment and my sister to "do the deed", I took control of the uncontrollable and shaved my head.
Sharing heartfelt gratitude for my friends and family


Buzz Me, Baby


Suddenly, the bitter elixir forced upon me became sweet. With every laugh and embrace, my happy stick grew by enormous proportions and I had an overwhelming urge to extract more juice from the lemons. Rather than throw the yellow orbs back out into the universe, I was ready to squeeze the life out of them giving me lemonade to spare. That night tears were shed and laughs were shared. It was a night filled with bittersweet moments. A night of making the sour sweet.

My daughter and my mom...leaning on each other

Family portrait with my new fake 'do


Just so you know, I do believe when life gives you lemons you should make lemonade. It may not always be as simple as "add sugar, water and stir" but I'm proof it can be done. Maybe not on your own, but as another old saying/song goes "I get by with a little help from my friends". As corny as this may sound, when life shoves lemons in your face, let the love of family and friends be your sugar and laughter be your "stir stick". Dilute the bitterness with faith and house it all in a pitcher of prayer. Everything...and I do mean everything...goes down easier when following this recipe.

With love always,
-L

Friday, October 29, 2010

Coming Soon...

...updates, photos, deep thoughts, randomness, hilarity...all things "me" will be coming your way very soon.

Chemo treatments are going well but weekly treatments have wrecked havoc on my routine. I've actually been writing posts like a crazy woman but never seem to finish any of them. My biggest excuse is drug induced brain fog. Friday has become chemo day and the weekend is commited to recovery. On those days, due to the drugs I take, I have been known to speak nonsense, continually repeat statements as I remember very little and in the process keep everyone entertained. I intentionally avoid writing on these days. The spoken word can sometimes be forgotten or an argument can be made that disputes any statement made. It becomes a matter of "your word against their's". In other words, you stand a chance of lying your way out of just about anything verbal. Putting thoughts in black and white makes them more permanent and leaves undenialable proof that you may have temporarily lost your mind. I fear these incidences could come back to haunt me. Anything written on those days requires extra time and attention for proofreading. That leaves Monday through Thursday as days to accomplish all necessary tasks. I'm learning that cramming a 5 day work week into those 4 days can be draining. Add attempted daily workouts, required personal paperwork and the occasional load of laundry and you can see why my time for writing posts has become so limited.

Documenting this journey is very important to me. Blogging...writing... has always been and will continue to be my therapy. But life must be lived. So...if you are interested in reading my blatherings, check back from time to time. I'm beginning to get a handle on things (bah ha ha) and will be posting again very soon.

Before I go, I want to share a "????" moment I had while receiving one of my latest treatments. It validates my reasons for refusing to permanently document anything while in a drug induced state.

A "Did I really just say that?" occurrence:

Believe it or not, I welcome Fridays. Friday is treatment day. My reasons for embracing this day with open arms are simple to me yet some might find them odd. Then again, many find me odd in general. My number one reason is a much needed 3-4 hour nap. I've found the most annoying side effect of chemo to be the inability to sleep. Until a week ago, the most consistent sleep I got was during my treatments. I've since discovered a way to ensure a good night's rest giving me much more energy and an overall feeling of "wellness". Even still, who doesn't love a good nap. A mega dose of Benadryl via IV accompanied by Ativan takes me directly to dreamland. Within 10 minutes of the meds coursing through my veins, I'm a goner. Friends and family take turns transporting me to and fro each week and we always share a few laughs over statements and proclamations made during those 10 minutes. I rapidly descend from reasonably normal mental faculties to those somewhere close to what is considered deranged. The interesting part is in spite of my inability to govern what I say, there is a part of my mind that is able to comprehend and remember the absurdity of it all. Even as I make my nonsensical statements, in the deep dark recesses of my mind I'm asking myself "What the heck???".

In addition to all the drugs, treatments require I be given large quantities of fluids. As we know, "fluid in" means "fluid out". My naps are always interrupted by the need to relieve my bladder of the enormous burden. Ever the independent girl, I argue with anyone wanting to help me find my way to the restroom. I stubbornly and drunkenly navigate my way through the chairs of other patients, dragging my IV tower along, doing my very best to focus on not tripping over the wheels of the tower or my own two feet. Most days I succeed. How I actually maneuver the act of "going potty"...well, I don't really know. What I do know is that I perform the act with my eyes closed. And it is dark when my eyes are closed. So very, very dark. So much so that I made this proclamation to gal pal, "K" upon returning to my chair.

"Have you ever closed your eyes and realized how dark it is? So dark that the dark actually touches your eyeballs? I mean you can actually feel the dark touching your eyeball! Like the dark is sitting on your eye!"


The words were said with much excitement and conviction as I was sure I had just discovered something unique and grand. Let's just say the words were said with as much excitement and conviction as can be exhibited through slurred speech. I remember "K" chuckling while my mind waged an internal war over whether or not this made any kind of sense. The "real me" kept urging me to shut up and stop the insanity as I know I'm not that dense while the "drugged me" thought it was the most profound statement ever made. I didn't know whether to pout because I wasn't being taken seriously or to hide my head in shame. Before a decision could be made, the mental war was over and I was fast asleep once again.

This is but one of the tiny things that keeps me laughing each day. I believe the ability to laugh at oneself is the key to a happy life. Thank goodness I find myself funny whether anyone else does or not. I guess that means I can relate to my own sense of humor. For now, I can chalk up my self-induced chuckles to the effects brought on by drugs. Not sure what excuse I will use when chemo isn't part of my daily life.



Until next time...

-L

Monday, October 11, 2010

Impact

I've been thinking. I know...thinking can sometimes prove to be an unsettling thing, especially when faced with a major life crisis. This time, my thinking has proven to be a positive. The past few days I've been sifting through blog posts from the past year or so, curious as to where I've been... what I've learned.... spending time reminiscing and doing a little self-evaluation. Amongst the stories of my crazy antics and tales of woe, I stumbled upon a gem of a post. In fact, it was so meaningful I want to revisit the topic.

Roughly a year ago, I wrote a post based on a prompt from one of my best blog pals, "h.b.". Through various prompts and challenges, "h.b." laid the ground work for us to do some soul searching in an attempt to think about who we are and where we are going. Being the deep thinking, soul searching type, I jumped in with both feet and participated in many of the challenges. My favorite prompt explored the subject of touching people's lives...it's not who you touch but how. I suppose it is more than fair to say being diagnosed with Stage 3 cancer causes one to consider their role in this world. "Have I...do I...make a difference?" Now there is a question. Even in that soul searching, cancer free moment of a year ago, I dug really deep with this one and poured my heart out in these words:

"We all have them. Those times that forever leave a mark on our hearts...our souls...our being. Be it a good or bad time, it shapes and molds the person we become. Much of the impact it has on us is defined by how we approach that moment and the choices we make regarding it. I've had many such moments. Big, huge, earth moving moments. Marriage, children, divorced parents...a divorced me. Children moving away and then returning. The death of someone very dear. Some of these were cause for celebration and others were the cause of much pain. But through them all, I learned more about me and became stronger and hopefully wiser as a result.

But not all defining moments are as enormous in size. There are also the little things that can affect us. Little chance moments such as an encounter with another person that leave us with a life lesson all because we crossed paths. There can be inspiring moments of awe and wonder. And there can be misunderstandings or misguided intentions that leave us in a position to choose how we will move forward and whether or not we will allow it to cause harm or good to a relationship.

Lately I have been facing many defining moments. Times that are testing my character and my strength. I'm facing decisions that are almost impossible to make as there is really no good answer. Some days I feel victorious in these situations and other days leave me struggling to not feel defeat. But I am most thankful for these trying times. I know that even on the down days, I am building strength. God has given me the ability to rise above by trusting in Him. And I'm learning with each test and working harder to be a more positive influence."


How odd that I seem to be in much the same position now as I was then. It is exactly as they say...oh how things change yet they somehow stay the same. At that time I faced difficult decisions...they were my defining moments. Now, I'm in a battle for my life...probably the most defining moment anyone could face. The big question is how will this defining moment impact my world?

Every day... every moment... I get to chose how I will tackle this challenge. I have a choice in how I live... how I fight... how I love. I believe my decisions will in some way impact others. If nothing more, they will leave a mark on those who love me and are fighting along side me. I can only hope to be a positive influence. To make a difference in some tiny way. I have no idea what that difference will be or how it will happen. It could come through a chance encounter or it could be much more significant. Whatever it is, I want to be mindful of the fact that each and every decision I make could in some way impact another. When reflecting on past moments and opportunities, I recall many with feelings of happiness ...others I relive with shame and regret. Those are the ones I wish I could call for a do-over as I feel certain I wasn't the positive influence I desire to be. But I have a chance to be different. To be better. To use this challenge I face for something good. I'm hoping to take a negative and make a positive. I want to make a difference.

Monday, October 4, 2010

Mom, Is That Mastectomy With An "M"???

Before going further, I must issue a statement to my daughter.

Sweet Ker-bear, I hope you don't mind that I share your story. It is too cute for words. I know you possess an incredible ability to laugh at yourself so I feel certain you will approve of my decision to share. Thank you for the laughter! Love, Mom





My diagnosis came on a Thursday evening. I didn't share the news with Keri until Saturday. Those were two REALLY long days. I refused to tell her over the phone and there was no chance to make the 3-hour drive to Georgia until Saturday. My mom, sister and I drove to Athens and broke the news. As expected, tears were shed and many questions were posed. But Keri is her mother's daughter. It wasn't long before she found a way to deal...to do her own compartmentalizing and strategizing. She began writing (yes, my baby girl has her very own blog) and set about training for 5k races to support Breast Cancer Awareness. It's her way of being proactive...of doing something.

Several weeks later, the news that had rocked our worlds had settled into the role of old news. Keri was home for a visit and we were sharing idle chit-chat. It was during this time I had one of the best giggles of my life. This is the jest of the story she shared...

Keri is like me in more ways than one. One particular trait we share is being Chatty Cathy's. We share what's on our minds with any and all who will listen. Talking is our therapy. We are open books. When she was in the early stages of processing the ugliness of the "c" stuff, she was telling numerous friends at school all about my diagnosis. She told them I would receive 6 months of chemo and would then receive a full vasectomy...

Uhhh, yep, my girl got the slicing and dicing of certain body parts mixed up! She had me slated to undergo a procedure I don't think I'm equipped to receive. The best part of the story is she shared this with several people before someone finally corrected her. All I can say is she now knows the difference between the snipping and clipping of one body part and the removal of another...she now knows it's mastectomy with an "M"!!!

Wednesday, September 29, 2010

Getting Down To Business

The verdict was in and I was found guilty. Of what I'm not exactly certain but I had been issued the life sentence of cancer so guilt of some sort was surely mine. That was my initial thinking. I was plagued by irrational thoughts that kept me wondering what I had done to bring this on myself. The mental volley being played out in my mind was exhausting. The what-if's and woulda-shoulda-coulda's nagged at me incessantly. What if I had eaten a cleaner diet? Could I have avoided this if I had not given into my love of all things chocolate? Should I have reduced my caffeine consumption? Why the heck did I have to learn to love coffee? Maybe I could have exercised more? What about my pleasurable partaking of alcoholic beverages? Not to mention any other pleasurable partakings... should I have avoided them all together? Maybe I had one cranberry and vodka too many? What if I had been a better person? Maybe if I had gone to church more? Was I kind enough to strangers? Had I been rude? Maybe I had not been a good enough wife or mother or sister or daughter or friend? Should I have become a missionary? Maybe a nun? Was I being punished for what I was or for what I wasn't??? Cancer had to be a punishment. There was no other answer. Cancer doesn't just happen! There had to be a reason it was happening to me!!!

Yes, that was honestly where my mind went. Not only have I confessed to being a troubled soul whose first concern was over the loss of her hair...preceding with great significance the question of whether or not she would die...but I must also admit to unbelievably ridiculous feelings of guilt and stupidity. All those thoughts...all that mind-numbing-drive-me-completely-crazy chatter only lasted a few minutes in reality. However, it felt like an eternity passed before I was able to regain control of myself. Once I settled the wild, animalistic panic that had taken hold of me, I was able to come to this conclusion...cancer does just happen. Okay, so I know there is more to it than that.. that there are medical reasons why it happens. I'm referring more to the aspect of who it happens to, not how it actually happens. I'm just one of many. I will never know why it happened to me and quite honestly, I don't need to know. Worrying about the why is nothing more than a waste of time and energy. It was time to bury the questions brought on by fear and guilt. It was time to get down to business.

Maybe I'm an odd being or maybe this is the way it works for most in this situation. I don't know the answer as I've not addressed this subject with many who have been in my shoes. But I process things very quickly. I compartmentalize, strategize and realize what is beyond me. I assess the situation and take control of what can be controlled and let go of the rest. I create a business type atmosphere in my mind and I set about doing the job at hand. For this task, the process began by creating a team. My Power Posse.

The team came into being the night of my diagnosis. The first board meeting was held at my friend, "L's" house. She and my friend, "K", were there to cry with me. To be with me as I made necessary phone calls. We prayed together. And we even laughed together. "K" is a nurse and she became my first line of defense. I thrive on information...knowing what to expect...and she gave me what I needed. She is also a great spiritual and emotional supporter. She has all but carried me through some of life's tougher times. She was a definite posse member. "L", well, "L" is my pal with whom I push the boundaries. She shares my love of adventure and we have survived many what-should-have-been-unsurvivable adventures together. To say we leave trouble in our wake is an understatement. We are the modern day Thelma and Louise. Although I don't know who would be Thelma or who would be Louise. (All I know is I wanna be the one who slept with Brad Pitt!!!) Well, fighting cancer was going to certainly be an adventure. I knew I needed Thelma???...or Louise???...by my side. The Power Posse was 3 members strong... "K", "L", and me. I was a member by default. With charter members defined, it was time for rules to be made. Here are the only rules I felt were needed at the time:

1) It's all about me.

2) Any emotion is fair. Expression of said emotion is always allowed. BUT regardless of that emotion, the rules state we must end all emotional "moments" with laughter.

3) I WILL look like crap. We bust on me....then work like mad to make me look cute.

I know, number 3 is sooo irrelevant in the grand scheme of things but all I can say to that is refer to rule number 1. It's all about me and I was as obsessed as hell with how I was going to be physically affected by chemo. I suppose I should have added rule number 4 stating rule number 1 trumps any and all other rules.

My Power Posse has grown tremendously in number since that first night and the rules have been slightly amended. I'm not sure how large the Posse has become. What I do know is we are all fighting the fight together. We are doing what we can to keep laughter alive in a situation where it could easily be suffocated...maybe even suffer a torturous death. Not a day has passed since that first night that giggles and grins and gut-busting guffaws have not been part of my day. What a blessing. What a treat. What a way to live. And as of that first night, I am living like I've never lived before.

Today I wish you laughter and smiles...sunshine and happiness...a life full of living!

Until next time...

-L

Monday, September 13, 2010

That Dreaded "C" Word

Cancer. The one word no one ever wants to hear. It is ugly. Vile. Frightening. Earth-shattering. Unwanted. Uninvited. Yet for some...inescapable. As of four weeks and four days ago, I became one of many for whom cancer is an undeniable reality.

It was a typical Thursday night and I was alone at the office attempting to make up for all the hours missed due to my recent run-in with bronchitis. An unknown number appeared on my phone yet I felt sure of its origin. Continuing to shuffle papers as I answered the call, I assumed it would be the results of my recent biopsies. I had no worry or concern about the results. The only troubles I felt my future held would be the scheduling nightmare I would most likely face in trying to have the annoying-but- what-I-knew-would-be-benign lump removed. A big believer in never worrying until there is something to worry about, I had convinced myself all was well. This time, the power of positive thinking failed me.

After only a few words of greeting from my doctor, the "C" word was spoken and from that point on, the conversation was a blur. Words like "invasive tumor", "highly suspected lymph node involvement", "chemo", "skin involvement", "full mastectomy", "radiation", "oncologist", "urgent".

Each word carried a sting...a bite...yet I was numb to it all.

I remember using my fist to stifle the sobs as I sucked up the tears that wanted to break free. For some unknown reason I needed to stay in control of my emotions...to grasp every word being spoken...to be in control of an uncontrollable situation. I remember thinking how often you hear of one's inability to process bad news as it is delivered and this was definitely bad news. In that moment it became critical to my existence to get the facts straight. I felt like a child yet wanted to act like an adult. My mind was spinning at an alarming pace but I was fighting with everything in me to bring it back to a steady place.

I was alone. No one was there to share the burden of recording the facts. It was up to me and only me to take care of business.

I asked the doctor to repeat her words over and over. I wrote them down and repeated them back to her, making note after note of what was said. Upon returning to my office the next day, it was painfully clear what I had done. One Post-It note after another was scattered across my desk, each one saying the same thing. In sorting through them, not one could spare me the ugliness of what was to come. Each held the same horrid verdict... I have breast cancer.

In hindsight I remember so little, yet I remember so much. So many odd thoughts passed through my mind and I find it utterly fascinating where the human mind will go when faced with such earth shattering news. As I hung up the phone, I began pacing the hallway, finally allowing the tears to flow. Words came tumbling from my lips, but I have no idea if I was successful in forming coherent sentences. I kept running my fingers through my hair, wondering how quickly it would begin to fall out.

And I began to wail.

I'm sure the mourning was over far more than the loss of my hair, but it was the catalyst that pushed me over the edge of the cliff into the abyss where only heartache, sorrow and irrational thinking dwell. I could think of nothing else. No thoughts of death. No fear of pain. No concern for the eventual loss of my breast. I just desperately wanted to keep my hair. Strange, superficial thoughts. The only thoughts my mind would allow in that moment.

That was four weeks and four days ago. A lifetime has been lived in those thirty-two days. So many doctors visits, too many tests and scans to count, poking and prodding, needles and biopsies, port-a-cath placement and two chemo treatments... all this and more has filled my calendar. My world has been turned upside down and shaken equivalent to that of a magnitude 9.0 earthquake. But through it all, I have found peace. The fear from that first night has been replaced with an acceptance...a willingness to work with the hand I've been dealt. My faith has always been a huge part of my life and God has come to my rescue once again. An enormous amount of information regarding my treatment has afforded me the chance to know what to expect in the upcoming months. To summarize, 24 weeks of chemo, a full mastectomy then radiation. The side effects have been spelled out. I don't like them, but I can live with them.

I honestly don't know the state of my prognosis. I've been made aware the journey will be a rough one but the expected outcome should be positive. I know no one can know for certain what the end result will be. Anything can happen. But God gives me hope. He gives me peace. As one of my favorite songs says, though He may not calm the storms around me, He will give me Perfect Peace. As for now, I rest well in the fact that hope is alive and in knowing that God is with me each step of the way. This road has been traveled by many. Sadly for so many women, it is not a journey unique to me. My wish is to fight the fight with grace and thanksgiving for all the good in my life. You see, I've discovered a truth. When faced with the worst, one can discover the best. That dreaded "C" word, while as ugly a word as can be spoken, has allowed me to see how truly blessed I am.

With Love...

-L