Monday, April 18, 2011

Restless Soul

This is me right now.

A restless soul.

And I don't know why.

Life is really good.

I'm easing into a new norm.

Steadily busy.

No major ups or downs.

So why the unrest?

When I dig deep I find the answer.

I need to write.

All that I've experienced these past 8 months is struggling to find it's way out.

Consider this fair warning of what's to come.

No rhyme or reason to my posts.

No consistent thought pattern to follow.

Simply me...

recording my life...

my life as a cancer patient.

Until then...

Friday, April 1, 2011

"Story of My Life"

Stopping by to share my favorite song of late...recently rediscovered my love for Bon Jovi. I didn't even know I had so many Bon Jovi songs on the ol' Ipod. Call me crazy, but I'm totally unaware of what songs are actually on my Ipod. More often than not, when relying on the genius of Apple technology for my listening pleasure, I catch myself saying

"Wow! Didn't know I had THAT song. Too cool!"

I then proceed to hit the replay button time and time again.

That's the beauty of being technologically challenged...you rely on others to load your Ipod for you and then receive the benefit of all the musical surprises!

This song happens to be the current one on repeat status. The words are so fitting for how I feel in this given moment. I've included the lyrics beneath the video...hope you enjoy!!!




"Story Of My Life"

Yesterdays a memory
Another page in history
You sell yourself on hopes and dreams
That leaves you feeling sideways.
Tripping over my own feet
Trying to walk to my own beat
Another car out on the street trying to find the Highway
Yeah, Are you going my way?

[Chorus]
This is the story of my life
And I write it everyday
I know it isn't black and white
And it's anything but grey
I know that no I'm not alright, but I feel ok cos
Anything can, everything can happen
That's the story of my life

I'm gonna write the melody
That's gonna make history,
And when I paint my masterpiece I swear I'll show you first
There just ain't a way to see who and why or what will be
Till now is then
It's a mystery, it's a blessing and a curse
Or something worse

[Chorus]

This is the story of my life
And I write it everyday,
And I hope you're by my side when I'm writing the last page

[Chorus x2]

Wednesday, February 2, 2011

It's About Time...

to update my blog. Almost 2 full months have passed since my last update. I've been known to disappear from the cyber scene from time to time but I believe this is my most lengthy hiatus.

It's about time...

for some good news. Recent scans have shown that chemo is doing it's "thang"! No active cancer cells registered! Woo to the hoo and back again!!!

It's about time...

to say goodbye to chemo once and for all. Exactly 5 months ago today I had my first treatment. Tomorrow I will receive my last!

It's about time...

to get back to the land of the living. Not that I ever totally left. But I'm ready to reclaim some free time.

It's about time...

to get back to living at warp speed. To get about the business of creating a life full of adventure.

It's about time...

for me to get back to being me...

Really...

It's about time!!!

Wednesday, December 8, 2010

Dearest Me,

Well, it seems you are in a place you never expected to be. A recurring theme for you, I know. How can it be you are so sick when you feel so well? You do realize how sick you are, right? Me thinks you may be living in a land where sickness is not an option...where sunshine and roses are the order of the day. Not that I'm judging you. It's what has seen you through so far. In fact, it's what I like most about you... your ability to block out the negative in order to remain positive... your refusal to take this lying down. But I think we've reached the point where it's time to be honest. Time to look at the ugly and accept it in all its ugliness. Time to wake up and smell the pungent aroma of this nasty thing called cancer. Time to realize you are on a journey...one that starts with a "c" and ends with pretty scary stuff. Don't be afraid. Acceptance is a good thing. Recognizing the severity of your situation will validate the rough stuff ahead. All the changes about to occur are necessary for survival. And you are a survivor...I won't let you be anything less.

You are moving right along. Depending on how you count it, you are almost through the first leg of your journey. When measured by time, you are only a little more than half way through chemo but it feels as if you are much further along...thirteen of sixteen treatments are behind you. Chemo is close to being a thing of the past. You've weathered it well. Now that you are nearing the end and looking ahead to what will come next, I can sense the panic rising. Take a deep breath and let's talk it out.

Surgery. The day you walk into the hospital the you you've always known but leave something far different. I will not lie. It is going to be challenging. Knowing what will be taken from you...well...it won't be easy. You will cry. You must allow yourself to mourn. Fear, doubt and disgust will rush to the surface. You won't want to look at yourself. Yet you must. This will be the beginning of a new you. What you do, how you react, where you let it take you will be a choice. I've been listening to the cries of your heart. I know your greatest fear is that you will not be able to accept the changes. That you will in some way revert to the "old you" that never felt adequate. The you that believed you were always less than. But you must remember that was the "old you". The you that didn't understand the peace that comes with self-acceptance. The you that was always looking outward for affirmation rather than looking within. The you that worried about the opinions of others. That girl is no more. She grew up. She learned how to live. She found peace. She found happiness. She finally realized that while she would always value the opinion of others, she valued her opinion of herself more. That is who you are. That is who you worked so hard to become. That is who you will always be.

Today is the day to begin the healing process of your tomorrow. No need to wait until the "ugly" is staring you in the face. Your body is strong and will most likely heal quickly. Your mind is equally strong. Embrace the fact you truly love yourself. You understand what it means to accept your strengths and your weaknesses. You know you fall far short of perfect and you realize that is perfectly okay. Believe in yourself. Refuse to listen to self-doubt and negativity. Focus on the fact that you have come so far. Rely on your faith and keep your eyes always upward. For if you do, you will be just fine.

With all the self love I can give,
Me

Friday, December 3, 2010

In Search of My Big Girl Panties

This week has left me figuratively digging deep in drawer after drawer, flailing about in an imaginary sea of not-quite-right undershorts, as I look for my freshest pair of big girl bloomers. Round two of chemo has begun and it is definitely time to "put my big girl panties on and just deal with it".

Heading into this week I was a bit anxious. The unknown does that to me. I suppose it does it to everyone. Feeling I had "mastered" the routine of round one's weekly treatments, I was apprehensive about the changes coming with round two. I knew the drugs I would receive would be heavy hitters and my physicians, as well as "K", had done a terrific job of educating me on what to expect. But you never really know how bad it will be until you have experienced it first hand.

Today marks day 5 in this 21 day cycle. Five days of almost constant nausea. Three days spent in a comatose state. Two days of bone pain. Neuropathy from round one has the nerves in my fingers on high alert. The slightest touch can create the feeling of a not-so-pleasant electrical current running up my arm. To complicate matters, the drugs given to alleviate the side effects of chemo have side effects of their own...the worst being severe dizziness.

That's the bad news. The good news is this. The nausea is tolerable. While I've spent many precious moments cozying up to the porcelain throne, I have yet to toss my cookies. Three days of abundant sleep have cured any and all feelings of exhaustion carried over from round one's incessant insomnia. The bone pain is also tolerable. Colder temperatures aggravate the issue but pain relievers do a good job of counteracting the problem. The issue of neuropathy is what it is. Fortunately, it will eventually go away and I see marked improvement each day. The dizziness? Well, the only up side to it is pure, unadulterated comedy. Everyone, including me, is having a grand time watching as I stumble into one thing after another. What can I say? You gotta laugh when you can.

So there it is. My record of the beginning of this half of chemotherapy. It isn't a picnic and it definitely ain't no party. But I can certainly deal. My search was successful and I'm armed with my big girl underpants. By the way, I bypassed the thong and bikini versions and went straight for the granny panty variety. I figured I could use all the help I could get.

Wednesday, November 10, 2010

In The Dark Of Night...


the demons come.

they invade my thoughts...

threatening my peace...

ravaging my heart...

dominating my mind...

devouring my happiness.

i whisper of their existence

reluctant to give them a voice.

they haunt me.

they mock me.

they are my enemy.


but HE is the answer.

i cry out to HIM.

HE is my rescue

my SALVATION.

with the sound of HIS VOICE the demons retreat in fear.

HE restores my peace...

my heart can rest

and slumber finds me.

Thursday, November 4, 2010

Squeezing Life's Lemons

We all know the old saying, "When Life Gives You Lemons...". And of course, we have all puckered up from time to time as life tends to give us all a lemon or two every now and again. In an attempt to be helpful, some of us can be all too eager to toss out the old adage to anyone facing life's struggles as if by making the assertion sour will suddenly become sweet. This statement is positive thinking at its finest. And who doesn't want to be positive. But sometimes the lemons being served up are well past their prime and it is impossible to turn rotten fruit into any kind of tasty concoction. No amount of sugar by way of positivity will mask the nastiness. You simply must hold your nose and choke it down...sometimes chugging one glass right after another. These are times when you know beyond a shadow of a doubt you are getting the short end of life's happy stick.

I guess cancer could qualify as one of those moments. It would by no means be a stretch to say cancer equals one tall glass of barf juice...juice from the most rotten lemons. Having a flask of this foul but potable liquid shoved in my hand, I had no choice but to swill, swig and swallow. Here is where it gets interesting. I have a major gag reflex. Try as I might to chug-a-lug, all I did was heave and hurl. I decided it was time to protest. To kick up my heels and revolt. Not willing to drink alone, I called in the troops. Life's libations are more easily tolerated when shared with friends. If nothing else, they could administer CPR lest I begin to drown in my own regurgitation.

I've written much bemoaning the loss of my hair...another sour, rotten, old lemon. I will not lie. I hated the idea of being bald. Yet after throwing a fit or two over the unfairness of it all, I began to feel better. One point to note, do you not find it interesting how ugly begets ugly? Not only would I be poisoned in an attempt to banish cancer cells from my being, but my appearance was going to take a side trip to the land of grotesque. I was forewarned of all to come....mottled skin, broken (if not loss of) nails, puffiness, weight gain (every girl's nightmare) and of course the mother of all horrors... total loss of hair. And by total hair loss, they meant hair on head, eye lashes, eye brows, hair on legs...although this one is by no means a negative. You learn to miss hair you didn't even realize you had. But I eventually came to terms with it. What the heck. It's only hair and it will grow back. Besides, I received some good news. My course of treatment would allow me to "keep" my hair through the first 12 weeks of treatment. Three months as a baldy was WAY better than six. The first round of chemo would only cause my hair to thin and only to the point of being noticeable by me.

Well, "Life" must have gotten wind of the insurgency to come and planned its own form of retaliation leaving me hairless from the get-go. Leave it to me to be different. To experience side effects unlike the norm. Always marching to the beat of my own drum, I must say this was one time it would have been nice to have been a conformist.

Me and my not-so-wee-ones with a hat to hide my "hag" hair

Seeing this as only a minor set-back and by no means interpreting it as a battle lost, I forged ahead with my plans to laugh in cancer's face...literally. What did I do? I took my jar of "jungle juice" and threw a party. I called it my "Buzz Me, Baby" party. With friends and family to witness the moment and my sister to "do the deed", I took control of the uncontrollable and shaved my head.
Sharing heartfelt gratitude for my friends and family


Buzz Me, Baby


Suddenly, the bitter elixir forced upon me became sweet. With every laugh and embrace, my happy stick grew by enormous proportions and I had an overwhelming urge to extract more juice from the lemons. Rather than throw the yellow orbs back out into the universe, I was ready to squeeze the life out of them giving me lemonade to spare. That night tears were shed and laughs were shared. It was a night filled with bittersweet moments. A night of making the sour sweet.

My daughter and my mom...leaning on each other

Family portrait with my new fake 'do


Just so you know, I do believe when life gives you lemons you should make lemonade. It may not always be as simple as "add sugar, water and stir" but I'm proof it can be done. Maybe not on your own, but as another old saying/song goes "I get by with a little help from my friends". As corny as this may sound, when life shoves lemons in your face, let the love of family and friends be your sugar and laughter be your "stir stick". Dilute the bitterness with faith and house it all in a pitcher of prayer. Everything...and I do mean everything...goes down easier when following this recipe.

With love always,
-L